JOB DESCRIPTION
The IGTP is looking for a Research Nurse to work on the DM1-Hub project.DM1-Hub aims to be the basis for the implementation of precision medicine aspects in Spain for the benefit of patients with Myotonic Dystrophy type 1 (DM1), prioritizing better diagnosis and optimization in the use of soon-to-be-available treatments. The DM1-Hub project brings together a group of 80 professionals in the areas of research and clinical monitoring of DM1. Together they form a multidisciplinary work team with extensive experience in this pathology at the research level, which includes predoctoral, postdoctoral and senior researchers, including renowned research groups in the field of rare neuromuscular diseases and DM1 in particular. Specifically, the team is made up of specialists in genomics, epigenetics, bioinformatics, biostatistics, proteomics, applied research and scientific dissemination. In turn, the team makes up an important network of around 70 health professionals (neurologists, neuropediatricians, neuropsychologists and nurses), in more than 40 hospitals in 8 different Autonomous Communities, who follow up with DM1 patients in their consultations.
We are looking for a compromised and enthusiastic nurse for DM1-Hub project. He/she would interact with nurses and other health professionals around Spain that will be doing the same tasks in another Autonomous Communities. The project DM1-Hub is funded through a grant PMPER24/00007 from ISCIII for Research Projects on Rare Diseases, from the 2024 Call for Joint Missions of the Ministry of Health and the Ministry of Science, Innovation and Universities, under the PERTE for Vanguard Health and within the framework of the Recovery, Transformation and Resilience Plan.
MAIN RESPONSIBILITIES
The nurse would be contributing to different aspect of the DM1-Hub project:
Before starting the nurse together with nurses of other autonomic communities would receive training in:
- Mission, objectives and main tasks in DM1-Hub project;
- Collecting clinical variables from patients (formation given by the DM1-Hub clinical team);
- Passing neuropsychological tests (formation given by the neuropsychologist of the team);
- Database RedCAp (training given by the experts in the DM1-Hub project);
- In blood samples collection and processing (formation given by the DM1-Hub lab people); Possibility of training with Treat-NMD in quality data acquisition.
Tasks:- Contacting patients (adults and children) and organizing the visits in 10 hospitals of Barcelona under the supervision of the coordinating Nurse.
- Obtaining clinical information of the patient by phone and in a presential visit.
- Passing scales and tests to the patients
- Helping the patients to fill patient reported outcomes
- Introducing all the data in REDCap and collecting missing data afterwards.
- Attending to regular meetings with the DM1-Hub curators and other members of the DM1-Hub team.
- Labelling and processing blood samples from the participants, frozen them and organize shipments to IGTP GRENBA lab.
- Sporadic participation in patients’ workshops or other scientific events.
- Reporting results, problems and achievements to the DM1-Hub managing team.
QUALIFICATIONS AND EXPERIENCIE
- Bachelor's degree in Nursing.
- Master in Science or related field is valuable
- Skills in blood extraction.
- Used to work with patients (adults and children).
- 1 year of previous experience in hospital work.
- Microsoft office skills.
- Languages spoken and written: Spanish and Catalan (English would bevalued).
- Skills in coordinating patients’ agendas.
- Skills in communication.
- Open to work in more than 10 hospitals of Barcelona.
- Open to make visits at patients home.
- Interest in research and willing to learn new skills.
WHAT WE OFFER
- Temporary contract linked to DM1-Hub until December 2026. Funded through a grant PMPER24/00007 from ISCIII for Research Projects on Rare Diseases, from the 2024 Call for Joint Missions of the Ministry of Health and the Ministry of Science, Innovation and Universities, under the PERTE for Vanguard Health and within the framework of the Recovery, Transformation and Resilience Plan.
- Part-time position.
- Start date: as soon as possible.
- Gross annual remuneration inherent to the square objected to this call, will be fixed based on the experience provided and the skills of the candidate, distributed in 12 payments.
- Flexible payment (childminding vouchers).
- 23 days holiday and 5 days for personal matters+ 2 days for Easter + 2 days for Christmas.
- Training capsules by the company.
- Be part of an excellent multidisciplinary research centre with the HRS4R badge.
- Location on the Can Ruti Campus, a first-class translational research environment in the Barcelona area, in a very stimulating scientific environment.
- The IGTP offers a supportive, friendly and collaborative ecosystem to promote professional development and help you achieve your research goals.
FOR MORE INFORMATION
https://www.germanstrias.org/es/research/neurociencias/5/grupo-de-investigacionen-enfermedades-neuromusculares-de-badalona-grenba
HOW TO APPLY
Interested persons must attach to the application:
- Motivation letter explaining their interest in the position.
- Updated CV.
- Contact of 2-3 references.
Applications will be evaluated in accordance with the guiding principles and objectives of the supply systems, following the process described below:
- Curricular evaluation: analysis of the curriculum vitae to assess aspects related to training, professional career and experience in positions related to the job position under selection.
- Personal interview: once the résumé has been evaluated, the selected candidates will be called for a personal interview to verify and expand on the information detailed in the résumé and to evaluate aspects related to experience and professional skills.
Applications that do not meet the requirements, that are not included in the cases foreseen or that are not processed in accordance with the established procedure will not be considered in the selection process.
DEADLINE FOR APPLICATIONS
The call for applications will close on
10th of April 2026.